Project Achievements: New York State Department of Health, AIDS Institute

HRSA HIV/AIDS Bureau's Special Projects of National Significance [1994 - 1999]:

New York State Department of Health, AIDS Institute

Completed by: David Jemiolo, M.S.
Last Updated: July 1999

Achievement 1: Completion of a multi-year developmental process for the creation of fiscally and programmatically viable HIV SNPs, resulting in the release of the HIV SNP procurement document (RFA) on May 3, 1999.

Key Elements for
Success:

Existing HIV infrastructure; information from client and provider cohort research; and government agency’s collaborative effort with maximum input from providers of care, advocates and consumers.

Factors that Limited
Success:

Development, dissemination, reviews and revisions of work products took longer than anticipated.

Factors that Ensured
Success:

Expertise of AIDS Institute and cooperative efforts between AIDS Institute and Office of Managed Care.

Achievement 2: Development of a Consumer Train-the-Trainer Curriculum: “Making the Right Choice: A Health Care Selection Guide for People Living with HIV/AIDS” to assist persons with HIV/AIDS to identify and advocate for their health needs within the context of managed care and to select the best plan/provider among the many competing options (including HIV SNPs) that will be available to them.
Key Elements for Success: Cooperative effort with significant consumer involvement.	Factors that Limited Success: Changing nature of the health care environment in New York State.	Factors that Ensured Success: Expertise of AIDS Institute and experience working with consumers and providers.

*Achievement 3:* Development of educational materials and implemented activities designed to assist Ryan White and community-based providers of AIDS -related services to successfully join NYS’ developing managed care environment. Materials included a handbook: Establishing Linkages Between Ryan White Providers and Managed Care Organizations, and a desk reference for managed care organizations. Activities included a series of strategic planning conferences for Ryan White and CBOs held in four New York State locations during 1998.
Key Elements for Success: Long history of AIDS Institute creating a developmental partnership with the provider community.	Factors that Limited Success: Quick-changing environment and resources for ongoing TA.	Factors that Ensured Success: AIDS Institute to bring providers together for TA.

*Achievement 4:* Completion of longitudinal study (client cohort).
Key Elements for Success: Ability to retain more than half of the original subjects.	Factors that Limited Success: Difficulty in contacting subjects.	Factors that Ensured Success: Alternative contacts to locate subjects and persistence.

*Achievement 5:* The development of open-ended coping, decision making, and quality of care assessment.
Key Elements for Success: More in depth picture of problems in health care system.	Factors that Limited Success: Developing a coding system.	Factors that Ensured Success: Are able to capture actual experience of participants.

*Achievement 6:* Flexibility of medications module.
Key Elements for Success: Ability to capture latest medication information.	Factors that Limited Success: Inability of subjects to recall the correct name.	Factors that Ensured Success: Utilizing illustrations.

Lessons Learned from this Project

Project Index for Achievements and Lessons Learned

New York State Department of Health, AIDS Institute